The lived experiences of caregivers: psychological and social implications of caring for patients with Bipolar Disorder

Abstract

Due to the nature of the illness, bipolar disorder (BD) has detrimental effects on the diagnosed patients as well as their caregivers (Hajda et al., 2016). Vast amounts of research have been published on the impact and implications experienced by caregivers of mentally ill patients however, a majority of research assessing the psychological and socio-economic status of the caregivers has been quantitative in nature (Sharif et al., 2020). This study sought to understand the psychological and social implications of caring for a patient with BD, with a specific focus on caregivers in the Gauteng region. The middle-class was chosen as Ayalew et al. (2019) found that the higher the caregiver’s income, the fewer implications they experienced as a caregiver. A phenomenological framework was used to conduct this study. The qualitative method of data collection was face-to-face, in-depth interviews with six participants (two males, four females), who were selected using purposive sampling. The interviews were transcribed verbatim, and the data analysed by means of Interpretative Phenomenological Analysis. For the caregivers in the current study, managing the patient’s unpredictable behaviour and dealing with the varying symptoms of the disorder presented a challenge. They described the caregiving role as an emotional rollercoaster, signifying the chaotic, up-and-down nature of the disorder. Being a mother-caregiver led to shared experiences among the caregivers, with similar implications being expressed. Being a wife, however, presented significantly greater caregiver implications. The male caregivers have adapted to their roles better than the females. The theme of financial implications was interesting in this study, as these implications varied among the respondents. The researcher found it interesting that five of the participants spoke about neglecting their needs without any probing, yet they also acknowledged the importance of self-care and being aware of their mental state. The participants in this study expressed the need for support groups, which are lacking in the country. Whilst the findings of this study were in line with much published research, the researcher notes that there is a scarcity of literature covering some of the themes and subthemes presented, and therefore further research should be conducted.