Nephrology

Permanent URI for this collectionhttps://wiredspace.wits.ac.za/handle/10539/32807

This collection contains data collected in the course of clinical work in Nephrology across several hospitals In particular , the CMJAH Living Donor Clinic has a long history . You can see that the work of the unit has inspired or directly produced many thesis. We also have a selection of work on transplants. This collection also includes data on kidney disease from other tertiary hospitals in gauteng

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PARTICIPANT NOTICE OF DATA SHARING FOR STUDY TITLED ‘EVALUATION OF POTENTIAL KIDNEY DONORS AND OUTCOMES POST-DONATION AT CHARLOTTE MAXEKE JOHANNESBURG ACADEMIC HOSPITAL (1983-2015)’.

Good day, The Division of Nephrology at Charlotte Maxeke Johannesburg Academic Hospital ( Previously JHB GEN)conducted a research study in the unit’s Living Donor Clinic. The study assessed clinical data of all individuals who presented to this clinic from January 1983 to July 2015. Written permission to access clinical records was obtained from the Human Research Ethics Committee (Medical) of the University of the Witwatersrand, Johannesburg. The purpose of the study was to analyze living kidney donation in the South African setting with the hope that the clinical findings of this research may contribute toward the future betterment of care for all potential kidney donors and that this data may expand upon the limited information available in this important field of study. As a patient belonging to this Living Donor Transplant Community, you have the right to direct how your information is shared for use by research platforms. You may engage with the principal investigator of this study should you have any queries regarding how the data from this study is being applied. You may also withdraw consent to share any information you feel is potentially identifying at any point. Should you require any further information regarding the study, please feel free to contact the principal investigator, Dr Chandni Dayal via email

chandni.dayal@wits.ac.za

or telephonically on 011 489 0467. Please note that prior to accessing your clinical records, approval was obtained from the Human Research Ethics Committee (Medical) of the University of the Witwatersrand, Johannesburg. A principal function of this Committee is to safeguard the rights and dignity of all individuals who are a part of research projects and the integrity of the research. If you have any complaints or concerns over the way the study was conducted, please contact the Chairperson of this Committee who is Dr. Clement Penny, on telephone number 011 717 2301, or by e-mail

Clement.Penny@wits.ac.za

The telephone numbers for the Committee secretariat are 011 717 2700/1234 and the e-mail addresses are Zanele.Ndlovu@wits.ac.za and Rhulani.Mukansi@wits.ac.za Thank you for reading this notice. 11 March 2022 Dr Chandni Dayal

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    Dataset from: Chronic kidney disease (CKD) and associated risk in rural South Africa: a population-based cohort study
    (2022-07-13) Fabian, June; Gondwe, Mwawi; Mayindi, Nokthula; Khoza, Bongekile; Gaylard, Petra; Wade, Alisha N.; Gómez‑Olivé, F. Xavier; Tomlinson, Laurie A.; Ramsay, Michele; Tollman, Stephen Meir; Winkler, Cheryl; George, Jaya Anna; Naicker, Saraladevi; Study data were collected and managed using opensource REDCap electronic data capture tools hosted at the University of the Witwatersrand
    Study Methods This longitudinal cohort study was conducted from November 2017 to September 2018 in the Medical Research Council (MRC)/Wits Rural Public Health and Health Transitions Research Unit (otherwise referred to as "Agincourt") in Bushbuckridge, a rural subdistrict of the Mpumalanga province in north-eastern South Africa. Agincourt is a Health and Socio-Demographic Surveillance System (HDSS) site that includes approximately 115,000 people. For this study, a minimum sample size of 1800 was required to provide at least 80% power to determine CKD prevalence of at least 5%, provided the true prevalence was equal to or more than 6.5%. Proportional allocation of Black African adults aged 20 to 79 years ensured a representative sample based on the most recent annual population census. Sample size was increased proportionately to 2759 individuals to accommodate a 25% non-participation rate. Dataset is 2022 cases Variables are: 1. age 2. Gender 3. Years of Education (refers to completed years of schooling) 4. Height (cm) (one decimal place) 5. weight (kg) (one decimal place) 6. BMI (body mass index) 7. POC random cholesterol (mmol/L) (2 decimal places) 8. POC random glucose (mmol/L) (1 decimal place) 9. HIV status is: Based on (i) prior HIV testing history OR (ii) HIV PCR testing for ARK 10. Using the urine pregnancy test, is this participant pregnant? ( 11. ERY (erythrocytes, blood) 12. Hb (haemoglobin, blood) LEU (leucocytes) 13. NIT (nitrites) 14. PRO (protein) 15. hepatitis B surface antigen 16. Serum creatinine (umol/L) 17. Systolic BP(1) 18. Diastolic BP (1) 19. Systolic BP(2) 20. Diastolic BP (2) 21. Systolic BP(3) 22. Diastolic BP (3) 23. Serum creatinine (umol/L) 24. Urine microalbumin (mg/L) 25. Urine creatinine (mmol/L) 26. Urine microalbumin (mg/L) 27. Urine creatinine (mmol/L) 28. APOL1 haplotype
If you, your family member or spouse was involved in the clinic , we urge you to read the notice above. You are welcome to comment on the data, express concerns or ask for changes in how the data is being shared. The library holds data in safekeeping for the researcher, for the community and for the sake of open science. You can contact the curator of the collection: Data Services Librarian: Nina Lewin at email

nina.lewin@wits.ac.za

or telephonically on 0814121940.