Dataset from Ark Consortium - Understanding kidney disease in rural central Uganda - Findings from a qualitative study.

Saraladevi, Naicker
June, Fabian
Working group ARK Consortium,
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The data collection and methodology of dataset are described as follows. As part of a multicentre study on kidney disease (ARK) undertaken in Malawi, South Africa and Uganda we undertook a social science component in Uganda to gather information on people's understandings and perceptions of a diagnosis of kidney dysfunction, treatment and treatment seeking. We recruited 46 people who had been given information about kidney dysfunction and had been found to have some, usually early, signs of mild impairment. Data were collected during two in-depth interviews. Most participants had heard of the condition, but half denied knowledge of the health status of their kidneys or receiving results of tests from the clinic team. This response may have been linked to a lack of symptoms, for those with early stage kidney dysfunction. The treatment people reported receiving caused some uncertainty about condition severity. This may be because several people were treated for other conditions (such as urinary tract infections) and did not require treatment specifically for kidney disease. In our study, participants assessed illness severity based on symptoms and treatment and compared with the progression of other conditions. Data has been collected and stored in REDcap see Maré I, Kramer B, Hazelhurst S, Nhlapho M, Zent R, Harris P, Klipin M Electronic Data Capture System (REDCap) for Health Care Research and Training in a Resource-Constrained Environment: Technology Adoption Case Study JMIR Med Inform 2022;10(8):e33402URL:, DOI: 10.2196/33402 for a full description of REDcap research data storage and management processes.
Africa South of the Sahara, Kidney Failure, Chronic